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Learning modules

Activity 3: Emily’s story

Emily is a 10 year old girl who was diagnosed at birth with a congenital heart defect. Her parents were informed soon after birth she had Hypoplastic Left Heart Syndrome. The Paediatric Cardiology Team were involved in Emily’s care upon diagnosis. Emily was not suitable for a heart transplant according to the national criteria. Emily had numerous reconstructive surgical procedures until the age of 9 when Emily’s condition deteriorated and further surgical procedures were not possible.

Emily lives with her parents and younger siblings on a cattle property in rural Australia. Emily’s parents work on the property and Emily’s mother has recently obtained work in the nearest town to assist the family financially.

Emily’s story

Thinking points